March 01, 2011

thoughts on recovery, fibroids and such things

Photo

Flowers are a pleasing image to go with talk about recovery and fibroids? yes? What image does one choose when discussing fibroids? These awesome gladiolas, just about to bloom, were given to me by Seanie. *bless him*

*whew* here I am! back at the blog. I’m going to be honest and say that there was a moment there over the last ten days when I thought about leaving the blog all together, because tweeting to communicate is just so much easier and far less time consuming...especially when you are about to write a post like this one.

Probably, really, I was and still am tired after having my body invaded and also I’ve been avoiding this post.

Why? because I’m private and modest {not to be confused with prudish} and there’s really no way around coming back to this blog without sharing at least some of what I went through with you. 

And why would that be? Because I’m all high and mighty on my soapbox about being genuine, and I believe that a certain level of honesty these days helps us feel more connected and less alone.  I really got that when I wrote my last post about 'approaching possible surgery'. You have no idea how much comfort it brought me to not only hear from you, but to know that so many of you understood exactly what I was going through. When facing a scary, uncomfortable life situation, knowing you are not alone = priceless.

So this is the part of this post where I will say to any of my male readers if you are squeamish about 'lady things', and female readers if you’re squeamish about your bodies, you can just stop reading here.

Actually I want to take a moment and talk about the squeamish females among us ~ of which I am one, until recently that is. Since we are living in a more transparent world, I think it’s really a shame that many of us have limited knowledge about and appreciation for the absolute brilliance that is our body. Knowledge is power, when you are ready to know, which is key. With the internet, there can be too much knowledge, and more specifically the scary kind. Which as I’m sure you already know that is not my style so hopefully this post won’t be scary but more informative. Not to worry, I’m not getting into all the nitty gritty details. I’m still private at heart, but I’m going to be as specific as I can be so that those of you who might be dealing with something similar can get the help you need.

A five centimeter fibroid was removed from my uterus - can I hear a hallelujah {without abdominal surgery!!!} My understanding, since my knowledge and awareness of fibroids and their removal has only recently become commonplace in my world, this is quite a feat for a doctor to accomplish.

The stress was in the uncertainty of it all. As  I mentioned in my last post, I did not know what outcome I would wake up with. Naturally I felt immense relief waking up with no fibroid and a trip home that same day. Not only for the recovery time involved but the cost. The cost is more than double if you have full on surgery and have to stay in a hospital overnight. And I do have insurance. Believe me, my experience with the expenses + insurance is a whole separate post that I would also like to talk to share with you one of these days.

Here’s the thing- apparently a lot of women have fibroids, or have had them or are living them with them right now and don’t even know about them. What is up with that?! I wonder? Really I do. I did not know I had one. I had no crazy cramping and I didn’t think my period was unusually heavier than it had been. It was discovered by my doctor while researching other complications, yet another separate blog post topic. My doctor says that they kind of sneak up on us. This one I had may have been growing anywhere from 3 - 5 years. Yup, I’ve not only been growing a blog and a business but I’ve been growing a fibroid too. Makes me wonder, do you think stress influences the growth of a fibroid...

Also if you have a fibroid, you can be anemic. Fibroids basically hijack your blood supply to survive and whether you notice it or not, you do bleed more during your period. I have now been diagnosed with anemia and am taking iron supplements to get my blood back to normal. Probably the reason why I seemed to get plenty of rest and yet, still felt tired most of the time. 

I hope I haven’t scared you so far, because this is not anything to fear. Fibroids are 99.9% not cancerous and many people do live with them. But it’s good to know if you have one, and it’s good to know that  removing them while leaving your uterus in tact has become more routine. That’s why it’s so important that we women really understand our bodies. Turning the other way because we are embarrassed or squeamish or don’t like doctors or whatever, doesn’t really help us in helping our bodies do the job they are so magnificently designed to do ~ stay healthy and balanced.

Also let me make note here: I am a huge advocate for alternative healing, specifically acupuncture. But there are times when the resources we have through western medicine are needed and for me personally this was one of those times. 

I also loathe taking medicine which is most likely why my body had a total freak out the night before my procedure. For those of you who might be facing something similar, just know that the day before might be a little harder than the day of. And if you go under anesthesia, the days following are also harder than the day of. Pain meds work wonders except in my case on the night before my procedure...yup, part of the process is putting your body into false labor. That’s right the day before my surgery I was having forced contractions. Lovely. This is to open your cervix so that a telescope can be inserted to do the procedure internally without causing damage. Believe me, even after that hellacious night of forced contractions, I will take it any day over having abdominal surgery. It was quite honestly one of the worst nights of my life. Not every person will react the same, so do not let me make you think that my experience will be your experience. Just be prepared either way and know that you will be alright. Also I didn’t realize until it was too late that I was supposed to take a nausea med at the same time that I took my pain med, one hour pre-the onset of contractions. Without going into any more detail, let’s just say I have way more compassion and respect for all mothers who have experienced intense morning sickness and/or severe labor pains. *yikes* you ladies are brave.

I also have way more compassion for anyone who has been severely ill,  had surgery,  gone under anesthesia, who has had to lay there in that sad excuse for clothing that they call a hospital gown, all alone on a gurney while hospital attendants 'not so gently' wheel you into an operating room.

Recovering form the night I had + the procedure + anesthesia is no walk in the park. On one hand I think it’s good not to know too much before you go into all of this. On the other hand I kind of wish someone would’ve prepared me, just a little. Because what I learned through this whole experience is that when you take fear out of the equation and relax into what’s happening with your body, knowing that it’s all part of the process, the physical discomfort lessens significantly. Stress only exacerbates pain. I want to say a special thank you to Megan who left a comment for me telling me exactly what she went through recovering from anesthesia. I read her comment on day 2 of feeling totally out of it and felt much better just to know that what I was experiencing was normal.

Thankfully I think we forget pain pretty quickly right? Otherwise I don’t think women would knowingly have more than one child. 

Ten days later, aside from feeling very much like I just want to be home and quiet {not including twitter where I’ve been chatting up a storm} I feel almost 100% normal. Oh, and to help the lining of my uterus heal I am on hormones temporarily, so I am also easily agitated, cranky and definitely have crazy weird cravings from Louisiana hot sauce to malted milk. *poor Sean* let’s just say that I’m not a the biggest joy to live with presently.

But I’m alright, and I have my moments of utter appreciation and bliss for making it out of all of this with relative ease. I learned a lot and have come out stronger and braver and as I mentioned before way more empathetic. I have also learned that rest is good, trying to cram it all in is just too stressful. Also, I think I’m going to try and adopt the gentle pace I’ve needed to get better into my regular routine. I wonder if the fine, hurried folks of Los Angeles will understand?

What I also wanted to share with you again is how much hearing from so many of you was such a great comfort to me. There was a moment when I was all by myself on that gurney waiting to be wheeled into surgery when I thought of everyone and all the good thoughts you had sent my way. I know it made a difference. Can’t thank you enough for all the love xo

I hope me sharing this did not freak you out, and better yet brings some comfort to anyone who might be in the same shoes as me. All in all it wasn’t so bad. I am not a good sickie, who is really? I don’t think I have a very high tolerance for pain. I am a bit of a baby when it comes to all of this, so my story may be a little bit dramatized ~ although...there were some tough moments. My doctor{s} have been awesome. The hospital staff was very kind. I am on the other side.

So how about we get back to pretty art, cute characters and creativity over here? Speaking of pretty art, I started a whole new series, in a different medium that I am really excited about. Hint, it has a little something to do with the Iphone...

Comments (37)

Hello! Glad to see you didn't give up on blogging, but more importantly that things went relatively well. That helpless gurney experience is the pits. And where is the dignity in a hospital gown? Last week I spent the day at the ER (for a test, not an emergency) and I tell you I felt 100% better just getting out of that gown and into my real clothes again. I heard of a woman that started a pretty gown co. for expectant mothers. I think we all deserve to bring our own pretty gown with us to the hospital or doctor's office for what ever the reason!

Welcome back Sweet Marisa!
Marisa....welcome back to your blog...just know you are not alone in any of your experiences...it's, scary, painful, tiring and then liberating all at the same time (especially when you are on the other side.) My word for the year is REST...for some of the very reasons you have talked about...take care of you, rest when you need it (your body will tell you when,listen to it)and readjust when you need to....all the best.....
Welcome back Marisa - you are so kind and generous to share your story with us. I for one am very, very glad you are willing to come back to your blog. Twitter isn't quite fulfilling enough! Also, I know how scary procedures can be and it seems they do live in you body long after they are over. I just had two moles removed today and just lying their prone, with that undignified gown hanging off of me, pumped full of epinephrin and litocain while they dug into my body and removed flesh made me feel all jittery, uncomfortable and sick inside, taking me right back to my first son's birth which was a horrible emergency. So, yes, take it easy and get lots of rest and be gentle with yourself - especially with all those nasty hormones. Thinking of you and so happy you are back in the blog-o-sphere!
So glad you're back and feeling better! I think you had it worse than Moms who give birth. I was totally drugged up for my babies and it didn't hurt hardly at all! ; ) I think? I don't know I was so blissfully happy who knows! But Happy Fibroid free day to you. Cheers to continued good health!
Oh My dear brave soul! You did it... faced the unknown and came out the otherside a better woman. We all should learn to grow from our experiences like you do! And WOOT for being fibroid free!!!!! Lots o Love!
Hi Marisa!
Glad you made it through that experience without complications! I never would have imagined that they would put you in false labor - craziness! And ouch!

It still blows me away that you and your fellow Americans have to not only get stressed out worrying about your procedure, but also about the cost. What a dreadful system.

Glad to have you back.
Bel
Oh, Marisa, sweet sister, I wish so much I could have just made you tea and brought you good books and stayed for a long chat (or better - a long listen)! Fibroids I have never had - but you know enough about me to know I've had some adventures with the womanly side of my body (wow, that sounded weird). Anyway, I could comment at length about several points in your post but I'll just leave it at this: I wish you continued peace and healing; I am so glad to know you the bit that I do; and I hope that someday we do get to have tea (or wine - your choice) and a long and lovely chat.
xo
Marisa, I remember you from Squam, but I didn't get to take your class. Just wanted to let you know that I relate to your post. I have been through surgery similar to you for fibroids. My sucker was a huge one, took 2 doctors 3 different surgeries (luckily it was laproscopic each attempt). I was very anemic, didn't have to go thru the false labor, but did go on lupron prior, and I had pains similar to labor when part of a fibroid started to die because it got to big for it's blood supply and my uterus was contracting, (the pain was awful). I know much of what you went through. It's tough, but it makes us stronger.

Glad to hear you are recovering well, and I am glad you are blogging again. Thank you for your post.
as I flipped your sweet calendar over to March this morning I sent more good thoughts your way, so it is with much relief to see your post this evening! take care and thanks for the reminder that there are yet more technologies (twitter, iphone)I need to pay attention to, ha, ha...
I am glad you wrote this and I am glad that I read it. :)
Done it! Labour and fibroids! - YUK
Hope your managing now :)
Welcome Back MArisa!
I´m happy to know you are feeling better now!
I think its WONDERFUL for women to learn about their bodies without shame and be able to talk about this openly .
BLESS YOU!!! as always!!!
xo
ishtar
PS: I just remebered the title of a very good book:
Women's Bodies, Women's Wisdom from DR. Christiane-Northrup
Hey Marisa I am so glad to hear you are doing much better! I can sympathize I had treatment just before Christmas for a 'ladies issue' and it was a horrible experience and rest was very much required. I too am now on the otherside thankfully and am grateful for the Doctors who treated me. It's funny you mention working into your daily routine more rest and a slower pace, that is exactly how I felt after my treatment. I only got signed off 2 weeks ago so it's felt like a long process with unknown outcome. But thankfully the outcome has been good.
Thank you for reminding me that I too wanted to slow down and somehow work that into my daily routine.
Many Blessings to you and Sean.
Niki
xxx
I'm so glad to hear everything went well. I come from a family of chronic oversharers, so I'm always happy when people start converting to our side. :) Best wishes for a speedy recovery.
Liz
I have to admit, when you said 'surgery,' I was hoping it was of the removing-an-ingrown-toenail kind... I'm sorry to hear you had to go through all this! Yikes. And having to go through labour without getting a baby as a reward? Brutal. At least now, the next time a mother says something like "You have no idea how painful labour is..." you can say, "Actually..."

I can't thank you enough for sharing this because I now suspect I might have a fibroid. I'm no hypochondriac, but I have the symptoms you mentioned and have been telling myself they're nothing. I also have an unexplained iron deficiency (despite taking potent iron supplements my iron count is 13--should be 80). I'm surprised my dr. hasn't picked up on this. I'm already seeing her next week for something else; I will definitely mention this to her. So your sharing of these intimate details may end up helping me... Thank you.

You are so brave, Marisa. Both for going through all this so elegantly (well, as elegantly as one can in an ass-exposing hospital gown), and for sharing your experience here.
So nice to see you back at the blog! And thank you for being so revealing about your procedure. When I had laparascopic surgery done just before Christmas I wasn't prepped for the post surgery portion. I had a tough time shaking off the anesthesia and my body didn't "snap out of it" and feel "normal" for a while. I had a D&C, and the Dr. also found endometriosis, and my colon had been attaching itself to a fallopian tube (yikes), plus a large fibroid was found but it's still residing within me,for now. It took weeks for me to get to the other side of it all and get back into my routines. Our bodies heal at their own individual pace that's for sure. Anyway, appreciate your open heart and willingness to share. Take good care & incorporate more rest if you need it. L.A. somehow has allowed me to do this :-) xo
Phew. Glad to hear that you are on the mend. In so many ways. Keep listening to your body.

And thank-you for the honesty. Hopefully it will encourage a few more to take a listen to their bodies. As someone who has had the pleasure of, ahem, multiple procedures and surgeries down there, as well as two babies I feel like this is old hat. But for many, as you've shared, it is fresh and scary.
Welcome back! thank you for opening up to us and I am happy to know that you are doing well. Take care of yourself. All my best!
It's so good to hear from you here. Missed you while you were recovering and worried too but mostly tried to focus on sending you good healing energy. Looking forward to hearing more about your new series.
Hi Marisa, I'm so glad you're better now. That sounded like a horrble pre-surgery night.
I actually have 2 fibroids of my own. They are pretty small so I chose to shrink them homeopathically which seems to be working. I've had several friends who have had huge ball sized ones which needed the surgery.

...I agree with Ishtar, "Women's Bodies Women's Wisdom" is an amazing book that EVERY women should own. The author/doctor is educated in both eastern and western medicine and shares so much information about our bodies. I end up loaning mine out like a library book to all my friends.

Thank you so much for sharing your story. Karin
Oh Marisa, it sounds absolutely brutal. I'm so glad the surgery was the minor version but even so, anesthesia recovery sucks, as does recovery from all that your body was put through like putting yourself into false labor. Was it misoprostol or laminaria? Ugh, the worst. I've heard those are worse than labor from two separate friends so YOU are the brave one here. And hormones are no fun although I have to laugh at your malted milk thing, a HUGE craving for me post c-section surgery when I was very anemic and was later told by my midwife that it is a common anemia craving. No theories on the hot sauce though. Anemia is no joke. I struggled with it too until I started taking Floradix which you can get at Whole Foods, although it sure is pricey. No constipation though which is the terrible side effect of most traditional iron supplements. Once you get your hematocrit levels in the normal range I think you'll be happy with how much more energy you have so that is something to look forward to in the coming months. Happy, healing thoughts coming your way. Be gentle with yourself. xoxo
Hi Marisa, Keep blogging ! It really is so much nicer than twitter! I'm glad your feeling better now, I totally know what you've been through, been there and am still there. SO fed up with all the bodily invasions by medics!! False labor is horrible, I was a terrible baby when I went through it! :-) I hope you start to feel better with your anemia soon,as Amber mentioned above, I found Floradix to be really good.
Take it easy :-)
I'm glad you're recovering well! And thank you as always for your honesty! It makes all of the rest of us better prepared for anything that might come our way!
I'm so pleased you havent given up blogging! I'm know I would not be the only person to miss you!!
Glad you are on the mend and thank you for your openess. I do believe, forewarned is forearmed and I'm sure plenty of us out there appreciate the knowledge and experience you have shared with us. xx
Oh my goodness Marisa! So SO SUPER glad to hear you're okay and made it through all of that. Thank you for sharing your experience as you are right - talking about these kind of things is invaluable. And special thanks for catching us up on your blog - I don't tweet so therefore tend to miss a lot!
Great to hear that you are on the other side and feeling so much better! WOW!! What a wild experience. I had surgery about a decade ago, and I had so many of the same feelings that you described before, I felt so alone, so I can totally understand how all of the love from your readers helped to carry you through!! xo
thank you so much for your beautiful package Ishtar. So, so thoughtful of you xo and thank you for the book recommendation as well.
so good to hear that you are on the other side and feeling better Niki x
Oh Katie - goodness. Thank you so much for your willingness to share your story here, and for all the insight you've offered. I'm so sorry to hear that you have had to go through all of this and I hope that you are on the other side of these intense treatments. I agree with you here. Honesty is important as well as each of us individually educating ourselves and being our own biggest advocate for our health. sending lots of love and continued good health to you.
thank you for this Amber ~ the sympathy and the floradix recommendation. it was pretty brutal :( and yes it was misoprostol
Welcome back!! And soo glad to hear you are doing better:O) Continued good health:O) And brave soul you are!! I didnt know they put you through false labor yikes!!!! Thank you for sharing
Oh Anne - I hope you are doing ok after your procedures. I had that exact procedure last year. A spot was removed where my arm and shoulder meet. It left me with at least 12 stitches, inner and outer as well as a decent sized scar because it is so hard to keep from moving your arm. No picnic at all. Also, come to think of it - required a much longer healing time than I was lead to believe. Months, close to an entire year it has taken for this to heal. I think the continual lesson in all of this is to ask our doctors the questions we want answered and give ourselves time and rest when we need it. On that note, I am off to bed.
Welcome back, Marisa- I'm so glad you're well! I'm so, soooo sorry you had to go through a night of labor pains...goodness. I've had two babies `au natural` and have such tremendous respect for the power of the body in relation to contractions...but NO WAY would I wish them on anyone who wasn't a) totally prepared for them or b) getting a baby out of the deal.
I'm glad all of our words were helpful during it all, and as a not-yet-twitter-er, I'm glad you're back on the blog too :)
Megan
Hi Marisa,

How wonderful of you to share your story. So glad that you are on the mend.

Take good care,

Noelle
A. I am so glad you have your health. B. I am so gladder (however selfish) that you haven't given this up because I just found you and have found such a wealth of great information, wisdom + creativity. C. But please stay healthy.
I am so glad to hear you're okay and didn't have to go through an invasive surgery.

I'm also glad you're back to blogging. ;)

xxoo
Nichole
Hi Marisa
Such wonderful news to read that the procedure was a huge success and that you are on the mend. Em xxxx